I was tearing up over watching the latest episode of Project Runway when Lucy approached me with a blank sheet of printer paper and a pencil. She asked me to draw a picture of her and I.
So I did...
She grabbed the paper and pencil from me, said, "Thank you!" and disappeared over to the corner to play independently as she often does.
As I was cleaning up her tornado of a mess at the end of the night, I came across the piece of paper with my drawing of Lucy and Mommy, but she had made her own revisions. She added some other 'characters' to the paper in what looks like TWO OTHER PEOPLE!
I was amazed and shocked that my two year old could depict such an accurate human form: a head, two legs, two arms, hands and feet! I am certainly turning out to be one of those moms that is absolutely amazed at everything her child does. The mom who insists that her child is a genius. Yup, that's me! My kid, the artistic genius.
When I asked her who or what it was that she drew next to us, she said,
Hahahahahahaha! That is so great! And Kacie, your child is a genius! Where you see people she sees a pothole! You absolutely shouls be amazed at everything she does. That is so great! We need to get together and reschedule Art Beast soon! Have a good weekend!
My name is Kacie. I am a 29 year old single mom to Lucy. She was diagnosed with Cystic Fibrosis at 2 weeks old in 2008. Along with maintaining Lucy's wellness, I practice the art of attached parenting and my thoughts on the subject might come up from time to time in my blog. Lucy and I bed share, are still breastfeeding after two and a half years, I wear Lucy as often as possible in our Moby wrap, and I made my own organic baby food to keep up with Lucy's high calorie intake. I love the beach, being outside, hiking and cooking. I am a part-time bartender living in northern California doing my best to raise the happiest, healthiest kid I can!!
Feel free to email me anytime. All emails will be answered!
knt81@aol.com
Fan Club...
CF In A Nutshell...
Cystic Fibrosis is a life-shortening, inherited disorder that affects the way salt and water move into and out of the body's cells. The biggest effects of this problem are the respiratory and digestive system where thick mucus blocks and lines the organs (primarily the lungs and pancreas) causing irreversable lung damage, poor digestion, poor absorption of food and really salty skin.
Lucy has Cystic Fibrosis and there is NO cure!
Donate To CFF & Team Lucy...
Lucy's Genetic Mutation...
Double Delta F508
Lucy's Current Meds...
~Vitamax/Source CF chewable tablets (1 tablet a day)
fat soluble vitamins A, D, E and K
~Bactrim suspension liquid (1.5 teaspoons twice a day/two weeks)
An oral antibiotic to fight current lung infection.
~Culturelle probiotic capsules (twice daily)
Same culture that lives in yogurt, just higher doses. Helps to maintain a healthy digestive tract.
~Miralax (one capful 17 grams every day in juice)
laxative and prevention of rectal prolapse recurrence
~Zenpep (6-7 with meals, 4-5 with snacks)
digestive enzymes to break down and absorb fats
~Prilosec pill form 1-2 times daily
PPI to decrease stomach acid for better digestion
~Pulmozyme by nebulizer (1mg once daily)
inhaled enzyme to break down and loosen mucus in lungs
~Xopenex by nebulizer (0.63mg 1-2 times daily)
inhaled levalbuterol for inflamation of the lung
~Tobi by nebulizer (1 vial twice a day; one month ON, one month OFF for 6 months). Currently OFF!
inhaled antibiotic to battle pseudomonas ~Hill-Rom Vest
(1-2 times a day for 30-60 minutes total)
chest pounding or 'thumping' helps loosen lung mucus. Settings range from 8hz to 10hz at a pressure of 4-5.
~Salt (lots of sodium supplemented all day [about 1/4+ teaspoon], in juice and food)
sodium chloride is not regulated well in the body of a CFer causing dehydration and thicker mucus membranes. It must be replenished.
Hahahahahahaha! That is so great! And Kacie, your child is a genius! Where you see people she sees a pothole! You absolutely shouls be amazed at everything she does. That is so great! We need to get together and reschedule Art Beast soon! Have a good weekend!
ReplyDeleteJason