Business was a little slow today at the Team Lucy Car Wash in Sacramento. We had beautiful 75 degree spring weather. We had a prime location on a corner zooming with heavy traffic. We had buckets, soap and plenty of towels. We had baked goods to sell, BBQ, and cold refreshments, but it seemed liked people had somewhere else to be.
We stood on the sidewalk waving our towels, hailing down cars to stop for a wash, but passers-by either honked or waved, but never pulled into our driveway. Our sign was amazing, but somehow not enough to grab the attention of the cell phone wielding drivers that drove by. About a half an hour into our washing, we actually witnessed a fender bender less than 100 yards away.
Lucy was so excited about her car wash. She stood on the grass, skin slathered in sunscreen, and yelled at the cars going by.
Our very first customer was a nice Sac State student who needed her bike cleaned. Badly. It looked as if it had been outside for the duration of the winter season. It was covered in cobwebs and crunchy leaves, but Lucy and I polished it up real nice!
I told my little helper that if we were going to find a cure for Cystic Fibrosis, it would take a little elbow grease to get it...
She was more than happy to help, and was able to reach places that were hard for an adult to get to.
One bicycle, three vehicles, and $137 later, we closed up shop and headed home. We had a lot of fun today, got some sun, and raised a few bucks for a cure. A extra special thank you to Jennifer, an old friend from high school, who came up with the idea and bought everything to fund the project. You made a big difference today and should be proud of yourself! Thank you!
My name is Kacie. I am a 29 year old single mom to Lucy. She was diagnosed with Cystic Fibrosis at 2 weeks old in 2008. Along with maintaining Lucy's wellness, I practice the art of attached parenting and my thoughts on the subject might come up from time to time in my blog. Lucy and I bed share, are still breastfeeding after two and a half years, I wear Lucy as often as possible in our Moby wrap, and I made my own organic baby food to keep up with Lucy's high calorie intake. I love the beach, being outside, hiking and cooking. I am a part-time bartender living in northern California doing my best to raise the happiest, healthiest kid I can!!
Feel free to email me anytime. All emails will be answered!
knt81@aol.com
Fan Club...
CF In A Nutshell...
Cystic Fibrosis is a life-shortening, inherited disorder that affects the way salt and water move into and out of the body's cells. The biggest effects of this problem are the respiratory and digestive system where thick mucus blocks and lines the organs (primarily the lungs and pancreas) causing irreversable lung damage, poor digestion, poor absorption of food and really salty skin.
Lucy has Cystic Fibrosis and there is NO cure!
Donate To CFF & Team Lucy...
Lucy's Genetic Mutation...
Double Delta F508
Lucy's Current Meds...
~Vitamax/Source CF chewable tablets (1 tablet a day)
fat soluble vitamins A, D, E and K
~Bactrim suspension liquid (1.5 teaspoons twice a day/two weeks)
An oral antibiotic to fight current lung infection.
~Culturelle probiotic capsules (twice daily)
Same culture that lives in yogurt, just higher doses. Helps to maintain a healthy digestive tract.
~Miralax (one capful 17 grams every day in juice)
laxative and prevention of rectal prolapse recurrence
~Zenpep (6-7 with meals, 4-5 with snacks)
digestive enzymes to break down and absorb fats
~Prilosec pill form 1-2 times daily
PPI to decrease stomach acid for better digestion
~Pulmozyme by nebulizer (1mg once daily)
inhaled enzyme to break down and loosen mucus in lungs
~Xopenex by nebulizer (0.63mg 1-2 times daily)
inhaled levalbuterol for inflamation of the lung
~Tobi by nebulizer (1 vial twice a day; one month ON, one month OFF for 6 months). Currently OFF!
inhaled antibiotic to battle pseudomonas ~Hill-Rom Vest
(1-2 times a day for 30-60 minutes total)
chest pounding or 'thumping' helps loosen lung mucus. Settings range from 8hz to 10hz at a pressure of 4-5.
~Salt (lots of sodium supplemented all day [about 1/4+ teaspoon], in juice and food)
sodium chloride is not regulated well in the body of a CFer causing dehydration and thicker mucus membranes. It must be replenished.
you have a very special little girl , and I will always be around to help if you need me!
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