Tuesday, July 28, 2009
Lucy's first breath: January 13th, 2008
Lucy's first GI surgery (meconium ileus): 18 hours old
Lucy's first PICC line: 18 hours old
Lucy's first antibiotic: 1 day old
Lucy's first positive CF diagnosis: 2 weeks old
Lucy's first pulmonolgist Dr. Perez: 2 weeks old
Lucy's first dose of pancreatic enzymes: 2 weeks old
Lucy's first daily vitamin AquaDEKs: 2 weeks old
Lucy's first CF clinic visit: 3 months old
Lucy's first chest percussion therapy or 'thumping': 3 months old
Lucy's first CFF Great Strides walk: 5 months
Lucy's first breathing treatment with Pulmozyme: 9 months old
Lucy's first cough: 1 year old
Lucy's first positive Staph culture: 1 year old
Lucy's first Xopenex treatment in a nebulizer: 1 year old
Lucy's first rectal prolapse: 14 months old
Lucy's first dose of Miralax: 14 months old
Lucy's first time taking pills (enzymes) by herself!!!: 14-15 months old
Lucy's first case of wheezing and alergy related asthma: 15 months old
Lucy's first MDI with spacer for Xopenex and Flovent: 15 months old
Thursday, July 23, 2009
With a baby pool, Elmo sprinkler and homemade high-calorie grape Popsicles who would want to go inside?? Below is the recipe I came up with and please note that these cool treats must be eaten nekked and do not eat them indoors!! They will stain clothing and carpet! Happy eating!
Tuesday, July 21, 2009
New hobby...Lucy loves to count to three (mostly to two) and then slide off the ottoman onto her new couch. She thinks it is so fun. If I did something like this I would be visiting the chiropractor for a month! Here is a video demonstration and her talking about the light on the camera...
Saturday, July 18, 2009
On this day, Lucy decided adamantly that she wanted to be wrapped up in her 'bankette.' Let me remind all of you that is was 102 degrees outside but that didn't matter one bit! She yelled 'bankette' bankette' until I rolled her up in a Lucy burrito. She proceeded to lay there for at least ten minutes being soothed by her 'bankette' and paci.
Wednesday, July 15, 2009
I took her to her pulmonologist on Tuesday where she had a sputum culture and was given a 14 day supply of Augmentin (amoxicillan) to be taken twice daily. In January, she had acquired a cold that ended up being a Staph infection but went away with antibiotic treatments. I am hoping that this is a recurrence of Staph and not something more serious like Pseudomonas or B. Cepacia, which would require a more serious treatment.
The lab results for the culture take days to come in and can be conducive to a couple of panic attacks for a CF mom in the meantime! The wait can do a number on me but nothing like the number Augmentin does to my Lucy! The side effects of this particular antibiotic is horrible including stomach cramping, yeast infections (diaper rash) and diarrhea. Feeding her yogurt with live cultures can make the effects milder but never have they been nonexistent!
I am hoping to get her through this treatment with little or no weight loss and, if it is even possible, have germ-free lungs.
On Monday, July 13, it was Lucy's 2nd half-birthday! That's right! Lucy is now 18 months old. How very cliche but it really does feel like just yesterday that I was knocked up, retaining water in all the wrong places and getting ready to pop her out into this crazy world! Now, just for the pure joy it, we not only celebrate her actual delivery date on January 13th but her half-birthday as well!
Lucy had a huge cupcake smothered with only the thickest frosting we could find, sprinkled with Oreo cookie crumbs and spotted with sugar daisies and an orange plastic dragonfly!
My sweet girl got even sweeter but only after we sang the birthday song and let her blow out the candle!
Lucy and her cousin Graycen spent lots of time playing together and reading books!
Lucy checks out the night's meal of catfish!
Fireworks on the 4th!
Blowing bubbles is a soapy passtime!
Hot and sweaty after picking Georgia peaches off the tree!
Rockin' out with her cousin Isaac! Get your autographs now while you can!
Sunday, July 12, 2009
We made it home safely but Lucy caught a nasty cold while we were there. I am thinking it was caught from the plane ride, breathing in all other passengers germs through the re-circulated air supply that is pumped through the airplane's cabin. She now has a nasty cough and is cranky, lethargic and has a lost most of her appetite. I will be making a appointment with her pulmonologist on Monday...
Thursday, July 2, 2009
Lucy and I are taking a week vacation and going all the way across the country to Cochran, Georgia to visit family from my dad's side! This is Lucy's first trip on a plane and my first trip on a plane with a child! I may need a glass of wine (or two) by the time this is all said and done! My blood pressure is probably through the roof but I think I'll live. I don't want to be that mom with the screaming child on the red-eye.
I may have computer access while I am there and may mini-blog about our travels but will save all picture blogging for when we return to sunny California.
Talk to ya'll later!
(LOOK AT THAT! Already picking up that southern accent!) :P