Improvement

Lucy started taking a proton pump inhibitor (PPI) for six days now, and the improvement in her poop and stomach symptoms are increasingly getting better!

At the clinic visit last week we discussed what a PPI was, and how it would most likely help the enzymes work more effectively. We had discussed and decided to give her a PPI called Nexium, which is one of the newest PPI out on the market. It took nearly a week to get the prescription filled because both of Lucy's insurance companies didn't want to fill the Nexium.

The primary insurance company claimed that they wouldn't fill the Nexium because there are cheaper PPIs on the market...like Prilosec, Prevacid, etc.

The secondary insurance company that covers most of her "special" CF needs, like the Vest, nebulizer, x-rays, Pulmozyme, etc...didn't want to cover the PPI claiming that it is NOT CF related! Yup, you read that correctly. They don't think that a PPI/antacid is necessary for controlling cystic fibrosis. I fell out of my chair when our nurse practitioner told me!

SO, instead of beginning Nexium last week, Lucy started on 20 milligrams a day of Prilosec. We will begin with Prilosec to see if that works for her (which it is so far), and move up to twice a day if needed.

It's working so far, so I won't complain too much yet...

Lucy's poops have been great! No more anal leakage, no more prolapses, and her poop doesn't even float anymore (meaning that more fat is being absorbed into her little body)!

I can't even begin tell you how much easier and less painful it is for Lucy when grease doesn't leak out of her butt constantly...

She has not been in a diaper for 3 days now! BIG GIRL UNDIES! I'm so proud of her and her new partner in crime, Prilosec, that I could just cry!