Tomorrow is clinic day for Lucy.
Despite her recent rendezvous with Augmentin to clear up some Staph and now a 3 week run of Bactrim and a bad case of viral conjunctivitis, I am fairly confident all things will go well. Her weight gain should NOT be a problem and I know this because I have to carry this weight around with my left arm.
***Insert mental image of my massive bicep here***
At this appointment:
-I will be discussing the fact that we, mostly Lucy, hates getting "thumped."
She, in fact, refuses, screams bloody murder, resists every attempt at doing CPT. All I ask is a mere 5-10 minutes a day right now but it turns into a 30 minute ordeal leading to the heartbreak a mother feels when she must pin down her child to do the "thumping."
WE NEED TO GET FITTED FOR A VEST!
-I will be asking our social worker about the different programs that I might qualify for as a low income, single mom with a CFer. I plan on going back to school to become a registered nurse and get my IBCLC, need to discuss and find some kind of daycare/preschool program that is CF friendly while I higher my education and pursue my career dreams.
I did not plan on strangers (daycare) raising my child and can be quite picky when it comes down to the specifics of these facilities in which she maty have to attend. I have a hunch that it may be difficult to find quality, loving care while fitting her needs as a CFer.
Worse case scenario, it will take billion years to get a degree and my certification because I go to school at night while my mom watches her. However it may happen...it IS going to happen! I DO NOT want to be slinging adult libations my entire life, thankyouverymuch!
Everything will go well at clinic tomorrow, I just know it. I will keep you all updated on how the visit turns out!!
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It WILL GO AWESOME TOMARROW!! I do hope you get a vest soon, although just so you know they still kick and scream and rebell lol... But I am sure it would help you feel better knowing YOU dont have to do the thumping.... I know I felt very blessed not to have too... but Lane was 4 when diagnosed (i wonder what age they start vests?) and it was prescribed right away (but took awhile to figure out the payment).... Sorry for rambling.. I just pray all these things fall in to place for you, school, daycare, vest, appointment... you are a wonderful mother (which is never replaceable).... Marcy
ReplyDeleteAhhh yes, I remember those days. The vest is awesome, and CPT will get so much easier! Although the first week or two is tough. When you get the vest, email me and I'll share some tactics we used to get her to sit and "enjoy" the vest. Hope the clinic appt. goes well! Froggymama
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