A couple of CF blogger's named Casey and Cystic Gal that I have been following lately have recently posted a blog about their CF firsts and I realized that a post about Lucy's CF firsts would be informative for some of my bloggy readers...
Lucy's first breath: January 13th, 2008
Lucy's first GI surgery (meconium ileus): 18 hours old
Lucy's first PICC line: 18 hours old
Lucy's first antibiotic: 1 day old
Lucy's first positive CF diagnosis: 2 weeks old
Lucy's first pulmonolgist Dr. Perez: 2 weeks old
Lucy's first dose of pancreatic enzymes: 2 weeks old
Lucy's first daily vitamin AquaDEKs: 2 weeks old
Lucy's first CF clinic visit: 3 months old
Lucy's first chest percussion therapy or 'thumping': 3 months old
Lucy's first CFF Great Strides walk: 5 months
Lucy's first breathing treatment with Pulmozyme: 9 months old
Lucy's first cough: 1 year old
Lucy's first positive Staph culture: 1 year old
Lucy's first Xopenex treatment in a nebulizer: 1 year old
Lucy's first rectal prolapse: 14 months old
Lucy's first dose of Miralax: 14 months old
Lucy's first time taking pills (enzymes) by herself!!!: 14-15 months old
Lucy's first case of wheezing and alergy related asthma: 15 months old
Lucy's first MDI with spacer for Xopenex and Flovent: 15 months old
30 Easter Basket Stuffers for 2024
1 month ago
WOW- Thanks for sharing. What a testament to how things have changed!!! In 1976, my sister was born. They didn't even KNOW she had CF until 1978. With me, they didn't confirm diagnosis until 6 months later.
ReplyDeleteI applaud you having her taking her own pills so early. Normalize normalize normalize her routine, mama.
You rule.
Love, Cystic Gal
Thank you so much for sharing! You've got an amazing little girl!
ReplyDelete