I can't even imagine how many hours she has logged on her nebulizer/mask, but that machine doesn't keep track of usage! If I were to take a wild guess, it would be in the 400 hour range! That makes for a whole lot of Barney, Caillou and Elmo movies!
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(1-2 times a day for 30-60 minutes total)
chest pounding or 'thumping' helps loosen lung mucus. Settings range from 8hz to 10hz at a pressure of 4-5.
~Salt (lots of sodium supplemented all day [about 1/4+ teaspoon], in juice and food)
sodium chloride is not regulated well in the body of a CFer
causing dehydration and thicker mucus membranes. It must be replenished.
~Hugs and Kisses (one million daily!)
lots of love goes a long way!
My daughter won't watch anything but Caillou during chest therapy. I'm starting to get the episodes memorized.
ReplyDeleteHow did you go about getting the new vest (the pink one) for Lucy? My daughter has had the Vest for a year and a half now and has only ever had that old, itchy, awful black thing! I think she'd love that pink one much better, and the fact that it is washable had me sold!
ReplyDeleteJess, I'm going to leave you a message on your blog with the same info because I don't know if you'll come back to this page, but for everyone else that is reading...
ReplyDeletethere should be a number in the vest machine that you can call for repairs or upgrades. For Hill-Rom: 1-800-426-4224