This Flash Me! Friday idea is the brain child of Jen over at The Groettum Family blog. It is a chance to take a peek into how other people live their lives without having to personally ask them, and without having to seem too nosy! This is the first week of Flash Me! Friday, and Jen asked us to take a photo of our home, the hub, where everything happens, and then in the weeks to come, we may delve deeper into more "secret" things like what the bathroom looks like (I may skip that week) or where Lucy eats her high calorie meals. This should get interesting and a little telling of how relaxed and easy-going I am when it comes to tidying up!
Thanks, Jen, for the challenge, and I promise to keep it as honest as possible by never cleaning up before I take the picture. Shouldn't be too hard.
Here is where Lucy and I live with my mom. You would never tell by the tiny, modest exterior, but it is a spacious three bedroom, two bath, two level town house with a garage. Home, sweet home!
Lovely!! Are you a single mom, with the father involved? Skyes dad is not involved, stupid man. He isnt on her birth certificate either. Hes just nothing to her really. But thanks OKAY!
My name is Kacie. I am a 29 year old single mom to Lucy. She was diagnosed with Cystic Fibrosis at 2 weeks old in 2008. Along with maintaining Lucy's wellness, I practice the art of attached parenting and my thoughts on the subject might come up from time to time in my blog. Lucy and I bed share, are still breastfeeding after two and a half years, I wear Lucy as often as possible in our Moby wrap, and I made my own organic baby food to keep up with Lucy's high calorie intake. I love the beach, being outside, hiking and cooking. I am a part-time bartender living in northern California doing my best to raise the happiest, healthiest kid I can!!
Feel free to email me anytime. All emails will be answered!
knt81@aol.com
Fan Club...
CF In A Nutshell...
Cystic Fibrosis is a life-shortening, inherited disorder that affects the way salt and water move into and out of the body's cells. The biggest effects of this problem are the respiratory and digestive system where thick mucus blocks and lines the organs (primarily the lungs and pancreas) causing irreversable lung damage, poor digestion, poor absorption of food and really salty skin.
Lucy has Cystic Fibrosis and there is NO cure!
Donate To CFF & Team Lucy...
Lucy's Genetic Mutation...
Double Delta F508
Lucy's Current Meds...
~Vitamax/Source CF chewable tablets (1 tablet a day)
fat soluble vitamins A, D, E and K
~Bactrim suspension liquid (1.5 teaspoons twice a day/two weeks)
An oral antibiotic to fight current lung infection.
~Culturelle probiotic capsules (twice daily)
Same culture that lives in yogurt, just higher doses. Helps to maintain a healthy digestive tract.
~Miralax (one capful 17 grams every day in juice)
laxative and prevention of rectal prolapse recurrence
~Zenpep (6-7 with meals, 4-5 with snacks)
digestive enzymes to break down and absorb fats
~Prilosec pill form 1-2 times daily
PPI to decrease stomach acid for better digestion
~Pulmozyme by nebulizer (1mg once daily)
inhaled enzyme to break down and loosen mucus in lungs
~Xopenex by nebulizer (0.63mg 1-2 times daily)
inhaled levalbuterol for inflamation of the lung
~Tobi by nebulizer (1 vial twice a day; one month ON, one month OFF for 6 months). Currently OFF!
inhaled antibiotic to battle pseudomonas ~Hill-Rom Vest
(1-2 times a day for 30-60 minutes total)
chest pounding or 'thumping' helps loosen lung mucus. Settings range from 8hz to 10hz at a pressure of 4-5.
~Salt (lots of sodium supplemented all day [about 1/4+ teaspoon], in juice and food)
sodium chloride is not regulated well in the body of a CFer causing dehydration and thicker mucus membranes. It must be replenished.
Lovely!!
ReplyDeleteAre you a single mom, with the father involved? Skyes dad is not involved, stupid man. He isnt on her birth certificate either. Hes just nothing to her really. But thanks OKAY!